This updated manual provides practical and innovative strategies for care of people with Alzheimer's disease.

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This unique guide provides practical and innovative strategies for care of people with Alzheimer's disease. It is written from the viewpoint that activity-focused care promotes the resident's cognitive, physical, psychosocial, and spiritual well-being. The text is very readable and highly recommended for caregivers and families of people with Alzheimer's disease.

Alzheimer's Disease: Activity-Focused Care helps the resident with dementia achieve a life of meaning, connectedness, and respect. Identifying the residents' abilities, not focusing on their inabilities, it teaches how "should's" and "can'ts" can become "could's" and "can's." Caregivers are offered problem-solving techniques so they can make informed decisions at the time needed for the resident seeking assistance.

• Includes forms and profiles for use by therapists and nurses
• Presents a holistic treatment program
• Features topics including: sexuality and intimacy, couples with dementia, spirituality, refocusing activities for physically combative or violent situations

Softbound

1. Activity-Focused Alzheimer's Care
Activity-Focused Care: Defined
The "Activity" of Life: Search for Meaning
Ability Centering: Upholding and Maintaining Competence
Cognitive and Physical Ability Centering and Challenges
Ability-Centered Plan of Care
Caregiving: Defined as Purposeful Activity
The 10 Commandments of Alzheimer's Care
Health Care Providers and Staff Issues
Summary
Suggested Reading
Appendixes

1-1 Alzheimer's Disease: Symptoms and Challenges

1-2 Ability-Centered Plan of Care

2. Maintaining Personhood: Psychosocial Aspects of Support
Promoting Life's Meaning and Personhood
Psychosocial Ability Centering and Challenges
Being Values, Not "Discounted"
An Alheimer's Disease Patient's Bill of Rights
Residents with an Integrated Self-Image
Residents with a Compromised Self-Image
Depression: Overwhelming Sadness
Interventions and Support of Psychosocial Needs
Being Included: Respected Connectedness
Couples with Dementia: Finding Balance
Development of a Psychosocial Support Group for Residents with Moderate Impairment
Staff Personhood: A Staff Statement of Respect
Health Care Provider and Staff Issues
Summary
References
Appendixes
2-1 Dementia Support Group Theme Facilitation Plan Example
2-2 Support Group Game
2-3 Staff Empowerment Considerations
2-4 Administrators Walk in Assistances' Shoes
2-5 Forms for Resident Case Study

3. LifeStory Book: LifePreserver for LifeAffirmation
LifeStory Book Indicators: LifeAffirmation
LifeStory Book: Contraindications for Use
Book Format Suggestions
LifeAffirmation: Book Content Recommendations
Family Suggestions and Quality Involvement
Guidelines for Staff Use of Books
Summary
Suggested Reading
Appendix

3-1 LifeStory Book Letter to Families

4. Communication: Understanding and Being Understood
Words: Bloomers or Witherers?
Communication: Guidelines for Connecting
Vocal and Spoken Communication
Nonverbal and Implied Communication
Language of Touch
Assessing Communication in Late-Stage Dementia
Assessing the Environment for Promotion of Communication
Health Care Providers and Staff Issues
Summary
Appendixes
4-1 Communication and Environmental Assessment Form
4-2 Communication Assessment Profile Form for Residents with Late-Stage Dementia

5. Daily Living Care Activities
Dementia Factors Affecting Daily Care Activities
Using Sensory Profile
Activities of Daily Living Guidelines
Hands-on Care Strategies
Bathing, Hygiene, and Oral Care
Dressing and Disrobing
Finding and Using Toilet Appropriately and Incontinence
Health Care Provider and Staff Issues
Summary
Suggested Reading
Appendixes
5-1 Daily Life Tasks: Resident Abilities, Challenges and Assistance Needed
5-2 Sensory Profile
5-3 Nursing Assistances' Care Conference Activities of Daily Living Resport Form
5-4 Resident Basic Care Information Form
5-5 Sample Dressing Policy and Procedures: Supporting the Symbolism of Clothing
5-6 Sample Staff Support Policy and Procedures: "Do What You Have To Do"

6. Eating and Mealtime: An Activity of Consequence
Eating: How Do You Promote Success?
Eating and Meatime Intervetions and Facilitation
Eating Behaviors Exhibited and Problems Encountered
Possible Causes or Antecedents of Eating Problems: Cognitive Challenges
Possible Causes or Antecedents of Eating Problems: Physical Challenges
Possible Causes or Antecedents of Eating Problems: Psychosocial Challenges
Possible Causes or Antecedents of Eating Problems: Environmental Challenges
The Humiliation of Being a "Feeder"
Increasing Food Consummmed and Nutrition: Approaches and Interventions
Dietary Department: Food Modifications and Mealtime Support
Dinind Environment and Equipment Support
Mealtime Assistance: Activities Involvement and Other Staffpersons
Family Involvement at Mealtime
Late or Terminal Care Nutritional Assessment and Challenges
Health Care Provider and Staff Issues
Summary
Suggested Reafings
Appendixes
6-1 Sample Policy and Procedures: Supporting Optimal Nutrition for Residents with Dementia
6-2 Finger Food Suggestions
6-3 Nutrient-Dense Recipes

7. Physical Wellness: Mobility and Exercise
Dementia Factors Affecting Mobility
Promoting Mobility and Independent Ambulation
Assiting Mobility
Caregiving for Immobile Residents
Assessing for Falls
Functional Maintenance and Rehabilitation Programs
Physical Restraints: Definition, Issues, and Efficacy
Dementia Factors Affecting the Use of Restraints
Negative Effects of Restraints
Alternatives to Restraints
Restraint Use Considerations: Can There Be Positive Outcomes?
Health Care Provider and Staff Issues
Summary
References
Suggested Reading
Appendixes
7-1 Exercises, Balance, and Strengthening
7-2 Fitness Trail: Examples of Exercises for Fitness Trail
7-3 Activity-Focused Mobility Task Example: Getting into a Car
7-4 Sample Fall Assessment Form

8. Behaviors: Understanding, Creative Interventions, and Refocusing
Risk Factors Precipating Behavioral Manifestations
Guidelines for Understanding and Refocusing Behaviors
Implementing a Behavior Profile
Tracking Behavioral Petterns: A Behavior Observation Form
Problem Solving: A Behavior Analysis Form
Safety in the Community: Elopement and a Police Dispatch Form
Behavior Analysis Examples
Safety Issues: Physically Aggressive, Combative, or Violent Situations
Resident Behavioral Responses
Health Care Provider and Staff Issues
Suggested Reading
Appendixes
8-1 Behavior Profile Form
8-2 Behavior Observation Form
8-3 Behavior Analysis Form
8-4 Community and Civic Professionals Training Outline
8-5 Lincolnshire Police Department Residential Checklist for THe Wealshire
8-6 Catastrophic Reaction Analysis

9. Meaningful Activites: Daily Life Stuff
Daily Stuff: How Do You Spell Success?
Objectives of and Activity
Criteria for a Successful Activity
Qualities of an Activity: Cognitive, Physical, Psychosocial, and Spiritual
Activity Analysis: Can "Anything" Be a Meaningful Activity?
Identifying the Therapeutic Value of an Activity
Activity Assessment and Grouping Residents for Effective Activities
Who Does Daily Stuff?
Making it Happen
Basic Stuff
Thinking Activities: Encouraging Cognitive Participation
Movement Activities
Psychosocial Activities
Spiritual Activities
Life Work and Normalization Activities
Community Partnership and Service for Others Activities
Intergenerational Activities
Activities for Engaging Male Participation, Enjoyment, and Satisfaction
Shoestring and Wearable Activities for Residents with Short Attention Spans
One-to-One Activities
Sensory Stimulation and Activities for Late-Stage Dementia Care
Activities for Behavioral Refocusing and Effective Intervention
Activities for Therapeutically reducing the Prevalence, Onset, or Intensity of Aggressive or Combative Behaviors
Activities for Residents Who Pace and Wander
Activities for Refocusing "Searching and Discovering"
Activities for Loneliness, Sadness, and Depression
Health Care Provider and Staff Issues
Summary
Suggested Reading
Appendixes
9-1 Activity Analysis Example: Using a Beach Ball
9-2 Reminiscing Kits
9-3 Sample Policy and Procedures: What Is am Age-Appropriate Activity?
9-4 Sample Policy and Procedures: What Is a Life Work or Normalization Activity
9-5 Life Work Activity Examples
9-6 Community Partnership Example Letter: Creating Meaningful Activity Opportunity for Nursing Home Residents
9-7 Community Partnership and Collaborating Forces to Enhance Quality of Life: Much More Than Just Entertainment
9-8 Activity Therapist Job Description Examples
9-9 Activity Therapy Care Conference Report Form
9-10 Activity Therapy Care Conference Report Form Information: Therapeutic Value

10. Expressions of Intimacy: Giving and Receiving Affection
Inclusiveness of Intimacy
Intimacy-Related Responses: Enabling Strenghts and Diminishing Challenges
Using an Intimacy Profile
Masturbaction: Self-Directed Intimacy and Caregiving Interventions
Overt or Hypersexuality: Issues and Caregiving Interventions
Guidelines for Intimacy Expressions in Care Facilities
Health Care Provider and Staff Issues
Summary
Suggested Reading
Appendixes
10-1 The Changing Face of Intimacy
10-2 The Joy of Life: Compassionate Relationships
10-3 Expressions of Intimacy Guidelines for Persons with Dementia Residing in Care Facilities
10-4 Expressions of Intimacy: Analysis
10-5 Intimacy Profile

11. Spirituality: Compassionate Connectedness and Well-Being
Appraising Spiritual Well-Being and Needs
The Clergy, Caring Congregation, and Confused Worshipper
Clergy Support for Persons with Dementia and Their Families
The Congregation's Shared Communion of Love and Support
The Confused Worshipper
Creative Ministry: Uniting and Alzheimer's Care Center and a Local Congregation
Creating a Praise, Thanksgiving and Worship Center
Activity-Focused Adapted Worship Service Guidelines
Activity-Focused Worship Examples: To Be Called By Name
Service of Remembrance: Celebrating Our Friend
Health Care Provider and Staff Issues
Health Care Provider and Staff Issues
Summary
Suggested Reading
Appendix
11-1 Religion, Spiritual, and Sacred Center Assessment of Compassionate Connectedness

12. Terminal Care: Final Storm Weathered
A Cherished Sentinal
Family Grief: Sadness without End
Pain: Recognizing and Responding to the Message
Hospice: Final Days with a Caring Team
Terminal Care Considerations
Medical Issues and Impending Death
Psychosocial Issues
Communication: "Talking Touch"
Activities fo Daily Care: Enabling Dignity
Nutrition and Eating
Mobility: Assisted and Passive Movement
Behavior: Challenging Demonstrations
Activities: Honoring Simplicity
Spiritual Support: Compassionate Connectedness
Death: Creation of a "Cherished Sentinel"
Autopsy: The Opportunity of Gifting Others
Health Care Provider and Staff Issues
Summary
Suggested Reading
Appendixes
12-1 Alzheimer's Patient Hospital Transfer Information
12-2 Alzheimer's Patient Hospital Transfer Information Explanation and Worksheet

13. Family Caregivers: Needs, Partnership, and Support
Grief and Loss
Making Nursing Home Placement Decisions
Nursing Home's Response: Building the Bridge
Admission Day: Suggestions on Getting the Resident to the Home
Admission Day: Family Mourning
Caregiving Partnership in Action
Facilitating Change: A Family Survival Handbook
Involvement: "Coulds" Versus "Shoulds"
Visiting: An Opportunity for Connectedness and Volunteering
Special Opportunity: Holidays, Family Weddings, and Special Events
Partnership in Action: Plan-of-Care Conference
Family Support: One to One or Group
Family Support: When Both Parents have Dementia
Partnership: Educational Opportunities and Families as Teachers
Family and the Dying Resident
Health Care Provider and Staff Issues
Summary
Suggested Reading
Appendixes
13-1 Twelve Steps for Caregivers
13-2 Care for Caregivers
13-3 Preadmission Information Form
13-4 Activity-Focused Nursing Home Visits
13-5 Coping with the Holidays and Gift Suggestions
13-6 Family Care Conference Form

Ability-Centered Plan-of-Care Glossary of Terms for Residents with Dementia

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